Survival Coalition Wisconsin

The Survival Coalition of Wisconsin Disability Organizations is a cross-disability coalition of more than 20 state and local organizations and groups. For more than 20 years, Survival has been focused on changing and improving policies and practices that support people with disabilities of all ages to be full participants in community life.

Updates

No deal is better than a bad deal. Short-sighted proposal puts state programs at risk next budget

Yesterday, the Governor and Republican State Assembly announced a proposal for a one-time tax rebate and permanent reductions in the amount of money the state collects to support state programs and services in exchange for some increases in education spending. Survival Coalition is concerned that acting on this proposal now puts many critical state programs and services at risk of budget cuts in the future.

During the regular budget process, the legislature chose not to fund many important programs at the level requested and made promises to special education that it didn’t keep. This year, the state budget promised schools would get 42 cents back for every dollar spent on special education but did not set aside enough money to cover actual costs so the reimbursement dropped to 35 cents on the dollar. The legislature could have acted during the regular session to provide the amount of money promised but chose not to do so.

This proposal again promises the same reimbursement rate as passed in July’s budget and sets an aspirational 50% special education reimbursement rate without changing the structural reason why the amount promised to schools for special education never materializes.

“A phantom 50% reimbursement rate is not real unless there is a guarantee that sufficient funding will be provided to cover actual costs,” said Tami Jackson, Survival Coalition co-chair. “This proposal does not change special education from a “sum certain” to a “sum sufficient” appropriation. We have seen this cycle repeat where the amount of money set aside continues to result in special education funding shortfalls. We can’t continue to cheer for empty promises.”

“The legislature did not choose to fully fund the Division of Vocational Rehabilitation when the budget passed in July,” said Jason Glozier, Survival Coalition Co-Chair. “In December, the Department asked for additional money because so many people want to work. The legislature chose not to act. Now people with disabilities who want to work are being told no, you must wait or utilize more costly Medicaid services, and they are being told they will wait at least a year for help. The Governor and Legislature are willing to spend the state’s savings and reduce the pot of money used to support state programs, but they are not willing to make sure the actual needs of people with disabilities are being met now?”

“The disability community has been relentless in its advocacy for better pay and benefits for care workers, better support for unpaid caregivers, and the real-world consequences for people with disabilities and families when there is no one to hire and no one who can fill in the gaps,” said Patti Becker, Survival Coalition Co-Chair. “This proposal does not address the ongoing caregiver crisis or many other supports that keep people living independently in their homes, able to stay in the workforce, and able to stay out of expensive Medicaid funded institutions.”

Since HR 1 passed last July, states have been struggling with SNAP and Medicaid cuts and changes to the Affordable Care Act Marketplaces. HR 1 is already impacting state budgets, threatening disability and home and community based services. Many states have already proposed disability-specific cuts to offset lost federal funding. Disability advocates are anticipating more federal funding cuts in the coming months.

“The states that reduced revenue by making tax cuts in good times are in a worse position to manage federal cuts now,” said Jackson. “State budget surpluses and rainy day funds are not enough to make up for federal cuts, increased costs, or revenue losses. A one-time $300 check now could be paid for in cuts to critical state functions next budget. That’s a high price.” Press release

Senate passes bill that lets hospital pick a decision maker, puts patient’s rights at risk

Today the state Senate passed AB 598, which lets hospitals pick a decision-maker based on a list set in statute (called a Patient’s Representative) if a patient does not have a Power of Attorney for Health Care and becomes unable to make medical decisions.

This bill is broader, and grants much more expansive powers than any other state’s Next of Kin laws.Wisconsin has deliberately designed its statutes and regulations to safeguard the rights of individuals; this bill bypasses those protections.

Patient advocates are concerned the bill will put patients at risk of exploitation and abuse and will create new legal and operational issues.

Read full press Release.

Survival Coalition March 19th Disability Advocacy Day to focus on need to keep and improve care infrastructure

“People with disabilities, older adults, and family caregivers are struggling to get care needs met even if they are in Family Care, IRIS, or CLTS,” said Jason Glozier, Survival Coalition Co-Chair. “Survival Coalition’s survey clearly shows our current Home and Community Based Service system supplements the unpaid work families are already doing everyday.”

Unpaid family caregivers are relied on to provide daily care needs and fill in gaps when paid workers don’t show up or there are no workers available to hire.

The survey found in a typical week that more than a third of all unpaid caregivers are providing care that is the equivalent to a full time, or more than full time job. Most survey respondents said they are caring for people who are getting some care needs met by Family Care, IRIS, or CLTS.

Not everyone who needs care has family to rely on for care ‘back up.’ The survey also found 31% of respondents go without care when paid workers can’t make shifts.

“People should not be forced to move into Medicaid funded institutional settings because Family Care, IRIS, and CLTS do not adequately support workers to meet people’s needs,” said Glozier.

Wisconsin’s economy suffers when there is not enough care capacity.

“Home Health Care is one of the fastest growing parts of the healthcare ecosystem.  People and families continue to wait for home services due to policy decisions that continue to avoid needed investments toward equitable starting wages and healthcare occupations.” said Patti Becker, Survival Coalition Co-Chair. “Local businesses in every Wisconsin community need workers, and these valuable workers’ care for the most vulnerable citizens, and their families. They pay taxes and spend money in local communities that contribute to our local economies.”

When there are not enough care workers to support families and people with disabilities, more potential workers either leave or are kept out of the workforce.

People with disabilities want to work; when they do not have the support they need to get ready for the work day, it can mean the difference between participating in the workforce or not.

“Unpaid caregivers are working less than they want or leaving the workforce to provide the care that keeps older adults and people with disabilities out of nursing homes and other high-cost institutional settings,” said Tami Jackson, Survival Coalition Co-Chair. “Unpaid caregivers are aging. They cannot provide the same amount of care forever. Wisconsin needs to invest in care infrastructure to keep people in the workforce and out of expensive Medicaid funded institutions.”

Statement on passage of AB 598: Bill lets hospital pick a decision maker, puts patient’s rights at risk

Today the state Assembly passed AB 598, which lets hospitals pick a decision-maker based on a list set in statute (called a Patient’s Representative) if a patient does not have a Power of Attorney for Health care and becomes unable to make medical decisions.

AB 598 bill has been amended three times, including the introduction of sub-amendments on the same day the bill was scheduled for a floor vote in the Assembly. This legislation would benefit from bringing together all stakeholders, including patient advocates, to ensure any new decision-making process addresses hospital discharge concerns without doing any harm to medically incapacitated persons. These amendments reviewed to date do not address the core issues of concern to patient advocates, and recent changes raise additional questions for advocates.

Read full Press Release here.

Disability Advocacy Day: Registration Open!

Disability Advocacy Day is in-person this year! Register today! Join us in Madison on Thursday March 19th with other advocates from around the state and meet with your elected officials. This is a great opportunity to share your story and educate your legislators on disability rights!
Registration is free but required to attend. Register by March 2nd.
Spanish Registration

Registration
 
DAD Flyer
 
DAD Sponsorship

​Survival Coalition Action Alert!​Re: 13.10 Request, Division of Vocational Rehabilitation services.

Dear Joint Finance Committee members:

On January 16th, the Department of Workforce Development submitted a 13.10 request to Joint Finance requesting an additional $11 million in state funding for the Division of Vocational Rehabilitation (DVR) so it can provide services through June 30, 2027, and eliminate the current wait list that was re-instituted in December of 2025. Survival Coalition urges the committee to approve this request. See full letter.