Survival Coalition Wisconsin

The Survival Coalition of Wisconsin Disability Organizations is a cross-disability coalition of more than 40 state and local organizations and groups. For more than 20 years, Survival has been focused on changing and improving policies and practices that support people with disabilities of all ages to be full participants in community life.


Participate in DHS Home and Community Based Settings rule and waiver changes

Last week, the Department of Health Services had a stakeholder call in which they shared details of their 5-year transition plan to come into compliance with the new CMS rule on what constitutes home and community settings. DHS also shared details on changes it plans to submit in its Family Care waiver reapplications this fall.

Earlier this year, CMS published new regulations that changed the definition of home and community based service (HCBS) settings in its waivers. The regulations ensure that Medicaid long-term care programs provide full access to the benefits of community living and offer services in the most integrated settings. Every state must submit a 5-year plan that demonstrates how it will come into compliance by July 17, 2019, with the new HCBS definition

The Department is taking public input on both its waiver submissions and on its 5-year plan by September 2. Details on the DHS transition plan and the proposed Family Care waiver renewal, as well as information on how to submit your comments is available at:



There are 3 plans on the DHS website to comment on; 1 for the Family Care MA Home and Community Based Services Transition Plan, 2 for Family care Renewal applications. We are suggesting that people make their comments on the Transition Plan.

If you want to participate in the grassroots Take A Stand On The Plan effort to gather stories on what needs to change in Wisconsin’s long-term care system, please go to<> and click the “Submit Your Comments Here” button, which takes you to a tool in which you can answer questions to share your experiences and ideas.

New Wisconsin Plan Means Big and Better Changes for People with Disabilities. 30-Day Public Comment Starts July 30.

Wisconsin disability advocates are optimistic about a plan put out today by the Wisconsin Department of Health Services (DHS) that could bring big changes to the way supports for people are provided and funded statewide. Read more…

Recommendations for Applying CMS’ New Home and Community-Based Services Rule to Residential Settings

Survival Coalition provides recommendations to DHS regarding new Home and Community-Based Services to Residential Settings. This is a companion piece to the Survival Coalition Recommendations Regarding Non-Residential, Including Vocational Settings issued in May, 2014. Given the Wisconsin DHS intent to publish its initial transition plan for implementation of the new Home and Community-Based Services (HCBS) rules on or about July 30, we do not expect these recommendations to necessarily be reflected in that document. We believe sharing these recommendations now will assist all stakeholders, including DHS, as the transition plan for the HCBS waivers in process of requesting CMS approval by 12/31/2014 is reviewed and revised prior to the expected submission to CMS by October 1.

Survival Coalition asks our Wisconsin Congressional members to co-sponsor federal seclusion and restraint legislation (S. 2036 / H.R. 1893).

Survival Coalition sent a letter today requesting that Wisconsin Congressional members who had not  signed on to co-sponsor federal seclusion and restraint legislation (S. 2036 / H.R. 1893) please do so. The Keeping All Students Safe Act (KASSA), S. 2036 / H.R. 1893,  limits harmful seclusion and restraint practices used on students, many of them children with disabilities, in public schools. Read letter.

Charter Schools Serving Wisconsin Students with Disabilities

Survival Coalition sent a letter to DPI to bring attention to recent federal action related to charter schools, including guidance related to supports for students with disabilities, and to inquire about Wisconsin data and DPI’s plans to monitor the issues identified by the federal government.

The Survival Coalition 2015-2017 Biennial Budget Priorities

The Survival Coalition 2015-2017 Biennial Budget Priorities paper is now available. You may download a complete version of the paper with all the priorities or you may download the individual issues: Long Term Care, Children’s Long Term Supports, Education, Transportation, Employment, Long Term Care Workforce, Medicaid, and Mental Health.