Survival Coalition Wisconsin

The Survival Coalition of Wisconsin Disability Organizations is a cross-disability coalition of more than 40 state and local organizations and groups. For more than 20 years, Survival has been focused on changing and improving policies and practices that support people with disabilities of all ages to be full participants in community life.


Survival Coalition Creation of a Caregiver Waiver-FAQ

Survival Coalition has developed a Frequently Asked Questions document on its recommendation to create a Medicaid waiver for Caregivers.

Lack of benefits is a major factor contributing to paid care professionals leaving the workforce. This proposal would extend Medicaid health care insurance to paid and informal caregivers, while allowing them to earn and save more.

Health care benefits adds a significant value that can make caregiving jobs more attractive, encourage worker retention, and enable workers to contribute more caregiving hours. For low-income informal caregivers, ensuring they can take care of their own health acknowledges their caregiving contributions that are benefitting the state and extends them a benefit in exchange for their caregiving work.

An estimated 29% of Wisconsin’s Home and Community Based waiver workforce (e.g. those working in people’s homes and community settings through programs like Family Care, IRIS, Partnership) and 35% of Nursing home workers are below 100% Federal Poverty Level (FPL) and rely on Medicaid-funded BadgerCare for access to health care. Low income informal caregivers also depend on BadgerCare, especially when their caregiving contributions limit their participation in the workforce. 70% of paid caregivers earn less than 300% FPL. Read full document.

State of the State Reaction from Survival Coalition

Disability Advocates Applaud Governor Evers’ Commitments to People with Disabilities: Request Renewed Attention in Key Areas The Survival Coalition of Wisconsin Disability Organizations was pleased to hear Governor Evers highlight priorities for people with disabilities in tonight’s State of the State address, including a commitment to meet the needs of students with disabilities through an unprecedented $600 million in funding for special education services. Read full Press Release

Registration is Open for Disability Advocacy Day 2019

Registration is now open.

Two ways to register:

Wednesday, March 20,
Monona Terrace, One John Nolen Ave, 
Madison, WI

Disability Advocacy Day is a day-long event focused on connecting Self-Advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the full day of activities.


  • There is small fee to register. $10 per person. NEW
  • Order a lunch (optional) $10
  • Everyone in attendance MUST Register
  • Direct Care Workers attending to assist you for the day must register for this event.
    Additional people must complete their own registration form.
  • Use your HOME/VOTING address to register. Business addresses or PO Boxes are not allowed.
  • No on-site registration or walk-ins.


9:30:      Check in: Monona Terrace, One John Nolen Drive, Madison
Stop by Voting Resource table. Spring Statewide Election April 2
10:30:    Briefing on Survival Coalition’s current issues, planning time
and lunch
12:15:     Rally at the State Capitol, Hamilton Street Entrance (3 blocks away)
1:00- 3:00:   Attend Legislative visits
3:00-3:30:    Check out and debrief after your visit at the Capitol

Event Reminders:

  • Participants support Survival Coalition’s mission to maximize community inclusion for all people with disabilities,
  • Participants must attend the 10:30 a.m. briefing at the Monona Terrace Convention Center.
  • Attend your legislative visits at the scheduled time with your group.
  • Coordinate your own transportation (if you need assistance) to the Capitol (3 blocks away)

Must be postmarked and paid for by March 8, so we have time to schedule
your legislative visit for you.

Don’t forget your  Blue Disability Advocacy Day T-Shirt!

Survival Coalition Statement on Appointment of Andrea Palm to Department of Health Services Secretary

The Survival Coalition of more than 30 disability organizations looks forward to working with  Governor-Elect Tony Evers’ proposed Department of Health Services (DHS) Secretary Andrea Palm to continue to improve important Medicaid programs that people with disabilities across the lifespan depend on throughout Wisconsin. Nearly 20 Medicaid programs in Wisconsin provide a variety of supports to people with disabilities so that they can live, work, and contribute in their communities. DHS leadership will be important in the months to come in facing critical issues, including a serious direct care worker shortage.


Survival Coalition provides Governor-Elect Evers’ Transition Team Recommendations for Immediate Action and the Biennial Budget

Survival Co-chairs meat with Governor-Elect Evers’ transition team to discuss recommendations for immediate Action and the biennial budget on issues including Caregiving, Medicaid prior authorization for children, MAPP, special education, and employment. Read the full document here.

Save the Date for Disability Advocacy Day 2019

Wednesday, March 20, 2019
Official Site for Disability Advocacy Day.

Start Time  TBD

Registration will open by February 1, 2019
No Walks in permitted.

Monona Terrace Community and Convention Center,
One John Nolen Drive,  Madison, WI

Disability Advocacy Day is designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.


Make certain your voice is heard! Disability Advocacy Day is designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.