Survival Coalition Wisconsin

The Survival Coalition of Wisconsin Disability Organizations is a cross-disability coalition of more than 20 state and local organizations and groups. For more than 20 years, Survival has been focused on changing and improving policies and practices that support people with disabilities of all ages to be full participants in community life.

Updates

Survival Coalition: Analysis of Governor’s budget proposal

Read full document

Press Release: Governor’s budget invests in care for people with disabilities, older adults

Survival Coalition applauds the Governor for a strong budget for Wisconsin that recognizes the critical need to bolster caregivers who help people with disabilities and older adults living in the community, strong support for special education, investments in mental health, and focus on non-driver transportation.
Survival Coalition’s 2022 statewide survey of family caregivers found family caregivers provide 80% of the care for children and adults with disabilities and older adults. 3 of 5 spend more than 40 hours – the equivalent of a full-time job—on caregiving duties. Read full press release.

REGISTRATION IS OPEN FOR DISABILITY ADVOCACY DAY MARCH 23, 2023

Register NOW!

Disability Advocacy Day is a day-long event focused on connecting Self-Advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the full day of activities.

REGISTRATION INFORMATION

·         Register is FREE- BUT you MUST register
·         Order a lunch (optional) FREE- BUT you MUST register
·         YOU MUST REGISTER TO PARTICIPATE. Direct Care Workers
attending to assist you for the day must register for this event.
·         Use your HOME/VOTING address to register. Business addresses or PO
Boxes are not allowed.
·         No on-site registration or walk-ins.

Registration deadline is noon on March 3, 2023

AGENDA AT A GLANCE

9:30:               Check in: Monona Terrace, One John Nolen Drive, Madison
                         Stop by the Voting Resource table
10:30:             Briefing on Survival Coalition’s current issues, planning time
and lunch
12:15:              Rally at the State Capitol, Martin Luther King Blvd. entrance (3
blocks away)
1:00- 3:00:    Attend Legislative visits
3:00-3:30:     Check out and debrief after your visit at the Capitol

Event Reminders:

·         Participants support Survival Coalition’s mission to maximize
community inclusion for all people w/disabilities.

·         Participants must attend the 10:30 a.m. briefing at the Monona
Terrace Convention Center.

·         Attend your legislative visits at the scheduled time with your group.

Register online  

Download Registration Form

EXTRA! EXTRA! Join our virtual information sessions if:

·       You want some extra time to plan for your visit with your legislators. OR
·       If you cannot attend Disability Advocacy Day in person but would like the information and would like to contact your legislator by phone.

**note: you do not need to register for Disability Advocacy Day to participate in the virtual information sessions.

We will have 2 virtual information sessions:

·       Wednesday, March 15: 12-1 pm

·       Thursday, March 16: 4-5 pm

If you would like to attend one of these sessions, email Survival Coalition for the link: SurvivalCoalitionwi@gmail.com

Save the DateDisability Advocacy Day of Action!

 Thursday, March 23, 2023   

 In -Person 10 A.M.– 3:00 P.M.
Starting at Monona Terrace, One John Nolen Drive, Madison, WI
(And State Capitol)
download flyer here

Survival Coalition 2022 Background Papers

Survival has prepared these issue papers to provide background and a disability perspective for elected officials, candidates for office, and other policymakers and advocates. Many people with disabilities access programs and services funded by federal, state, or local governments to support them in maintaining their health, accessing education and employment, and participating in their communities. Policymakers make decisions on programs and services that are critical to the independence and the lives of people with intellectual and developmental disabilities, physical disabilities, mental health conditions, sensory disabilities, and aging adults. Select issue to view each paper: Workforce, Long-term Care, Employment, Education, Medicaid, Mental Health, Transportation, Voting, and Children’s Long-term Supports. View all issues in a single document.

Press Release: Frazzled and Fried, WI family caregivers living in crisis (10/4/2022)

The relentless shortage of paid caregivers is negatively impacting family caregivers, Wisconsin’s workforce, and the larger economy.
A statewide survey of almost five hundred family caregivers reveals family caregivers are providing 80% of the care for children and adults with disabilities and older adults, often caring for multiple people simultaneously.
The volume of care provided across the lifespan is incredible and unsustainable. More than 80% have already been caregiving almost ten years, another 30% for twenty years. 1 out of 10 report caregiving for more than thirty years. Read full press release here. Read survey summary here.