The Survival Coalition of Wisconsin Disability Organizations is a cross-disability coalition of more than 20 state and local organizations and groups. For more than 20 years, Survival has been focused on changing and improving policies and practices that support people with disabilities of all ages to be full participants in community life.
Negative Consequences and Missed Opportunities for Students with Disabilities
Madison – The Survival Coalition of Wisconsin Disability Organizations is disappointed in Tuesday’s conclusion of the State Senate session, especially the passage of AB966 and AB970 and the legislature’s failure to use state surplus dollars to relieve chronic underfunding for students with disabilities. Read full press release
Survival Coalition has concerns about two bills the full Assembly will vote on today that would increase paperwork and penalize people who are already working for not working more by taking away their health care coverage. Read full Press Release
March 16, 2022, 10:00 am – 12:00 pm Join us virtually on Zoom
Registration Open– Deadline is March 8!
Disability Day of Action is a virtual event focused on connecting Disability Advocates with their legislators to talk about issues that matter. Participants learn more about issues during a short briefing then work in teams to plan what they want to say. Everyone will get their legislators’ phone numbers to call right after.
REGISTRATION INFORMATION
· Everyone MUST register to participate
· Use your VOTING address to register. Business addresses or PO Boxes are not allowed.
AGENDA AT A GLANCE
10:00– 12:00 – Check in to the Zoom meeting
– Briefing on issues
– Small group discussion and support for calling your
legislators
Afternoon: Call your legislators!
Register Now: https://bit.ly/DADreg2022
Flyer– English
Flyer- Spanish
Today, Survival Coalition of disability organizations, Wisconsin Aging Advocacy Network, and the Wisconsin Family Caregiver Alliance are releasing the sixth short video focused on the daily challenges faced by Wisconsin’s family caregivers.
This week’s video exposes the struggle caregivers face with the systems that are supposed to help them.
Watch this four-minute video on
Caregiver’s Third Job: Navigating the Maze of Systems
In addition to the care they provide, family caregivers are constantly faced with figuring out complex administrative tasks and systems. The systems caregivers depend on often become a barrier to care when paperwork is hard, confusing, time consuming, and when many phone calls and follow up e-mails are needed.
Action steps you can take to help Wisconsin family caregivers be heard!
Suggested post language: “For many caregivers, interacting with systems is extremely time-consuming and frustrating. Too often, systems push the job of how to get the supports people need back on the caregiver. When systems aren’t oriented around addressing real caregiver problems in real time, it makes it harder on the people already working their hardest.”
Suggested post language: “Caregiver’s Third Job: Navigating the Maze of Systems. Watch this four minute video to meet family caregivers across Wisconsin struggling with difficult, confusing, time consuming paperwork, endless phone calls and follow up e-mails, and other tasks systems push back onto caregivers in order to get the supports the people they are caring for need.”
Directly Tweet and post video on your Legislator’s social media
Suggested post language: “For many caregivers, interacting with systems is extremely time-consuming and frustrating. When systems aren’t oriented around addressing real caregiver problems in real time, it makes it harder on the people already working their hardest. Three things you could do that would help people like me include 1) Broaden Family Medical Leave 2) Make sure all caregivers can get help at ADRCs 3) create a Caregiver Tax Credit. These are a few of many needed policy changes.”
Important details legislators include where you live, your age, a little about the person(s) you care for, how many hours per day you spend caregiving, and how being a family caregiver affected your physical and mental health, and overall stress levels.
Today Survival Coalition of disability organizations, Wisconsin Aging Advocacy Network, and the Wisconsin Family Caregiver Alliance are releasing the fifth of six short videos focused on the daily challenges faced by Wisconsin’s family caregivers.
We need Survival Coalition members’ help to distribute this video and facts about Wisconsin family caregivers on social media, to grassroots, and to reporters.
This week’s video exposes the volume and kind of care families provide, and the lack of paid help available to hire.
Watch this four-minute video on
All On Our Own: Part Time Help for Full Time Care
The lack of quality direct care workers has increased pressure on family caregivers to an unsustainable level. Families have been forced to fill in the gaps, even though they already provide 80% of all the care needed. 85% of families do not have enough direct care workers to staff all authorized hours.
Action steps you can take to help Wisconsin family caregivers be heard!
Suggested post language: “Family caregivers spend their evenings, nights, and weekends providing care for loved ones. They pick up the pieces and provide care when direct care workers don’t show up, quit, or there’s no one to hire. The amount of care families provide is already unsustainable; the direct care workforce crisis pushes it to the breaking point. “
Suggested post language: “All On Our Own: Part Time Help For Full Time Care. Watch this four minute video to meet family caregivers across Wisconsin who spend their days, nights, and weekends caregiving with no break and no help to hire.”
Suggested post language: “The amount of care families provide is already unsustainable; the direct care workforce crisis pushes it to the breaking point. Three things you could do that would help people like me include 1) Broaden Family Medical Leave 2) Make sure all caregivers can get help at ADRCs 3) create a Caregiver Tax Credit. These are a few of many needed policy changes.”
Important details legislators include where you live, your age, a little about the person(s) you care for, how many hours per day you spend caregiving, and how being a family caregiver affected your physical and mental health, and overall stress levels.
(Madison) – The Survival Coalition of more than 20 disability organizations supports the work of the Wisconsin Department of Health Services and the Governor Evers’ administration to share regularly updated data regarding the impacts of COVID-19 in Wisconsin’s Medicaid Adult Home and Community-Based Services system. People with disabilities and older adults, particularly those who live in congregate or group settings are particularly vulnerable to the virus. Wisconsin’s long-term care program enrollment is 79,074 or approximately 1.3% of the WI population but accounts for more than 14% of all state COVID-19 deaths.
Survival Coalition is sharing the Department’s updated data Monthly.
The following data was published on November 22, 2021 and can be accessed in detail here: https://www.dhs.wisconsin.gov/hcbs/data.htm#cases
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