{"id":3241,"date":"2026-03-17T17:27:53","date_gmt":"2026-03-17T17:27:53","guid":{"rendered":"http:\/\/www.survivalcoalitionwi.org\/?p=3241"},"modified":"2026-03-17T17:27:54","modified_gmt":"2026-03-17T17:27:54","slug":"survival-coalition-march-19th-disability-advocacy-day-to-focus-on-need-to-keep-and-improve-care-infrastructure","status":"publish","type":"post","link":"http:\/\/www.survivalcoalitionwi.org\/index.php\/2026\/updates\/survival-coalition-march-19th-disability-advocacy-day-to-focus-on-need-to-keep-and-improve-care-infrastructure\/","title":{"rendered":"Survival Coalition March 19th Disability Advocacy Day to focus on need to keep and improve care infrastructure"},"content":{"rendered":"\n

\u201cPeople with disabilities, older adults, and family caregivers are struggling to get care needs met even if they are in Family Care, IRIS, or CLTS,\u201d said Jason Glozier, Survival Coalition Co-Chair. \u201cSurvival Coalition\u2019s survey<\/a> clearly shows our current Home and Community Based Service system supplements the unpaid work families are already doing everyday.\u201d<\/p>\n\n\n\n

Unpaid family caregivers are relied on to provide daily care needs and fill in gaps when paid workers don\u2019t show up or there are no workers available to hire.<\/p>\n\n\n\n

The survey found in a typical week that more than a third of all unpaid caregivers are providing care that is the equivalent to a full time, or more than full time job. Most survey respondents said they are caring for people who are getting some care needs met by Family Care, IRIS, or CLTS.<\/p>\n\n\n\n

Not everyone who needs care has family to rely on for care \u2018back up.\u2019 The survey also found 31% of respondents go without care when paid workers can\u2019t make shifts.<\/p>\n\n\n\n

\u201cPeople should not be forced to move into Medicaid funded institutional settings because Family Care, IRIS, and CLTS do not adequately support workers to meet people\u2019s needs,\u201d said Glozier.<\/p>\n\n\n\n

Wisconsin\u2019s economy suffers when there is not enough care capacity.<\/p>\n\n\n\n

\u201cHome Health Care is one of the fastest growing parts of the healthcare ecosystem.  People and families continue to wait for home services due to policy decisions that continue to avoid needed investments toward equitable starting wages and healthcare occupations.\u201d said Patti Becker, Survival Coalition Co-Chair. \u201cLocal businesses in every Wisconsin community need workers, and these valuable workers\u2019 care for the most vulnerable citizens, and their families. They pay taxes and spend money in local communities that contribute to our local economies.\u201d<\/p>\n\n\n\n

When there are not enough care workers to support families and people with disabilities, more potential workers either leave or are kept out of the workforce.<\/p>\n\n\n\n

People with disabilities want to work; when they do not have the support they need to get ready for the work day, it can mean the difference between participating in the workforce or not.<\/p>\n\n\n\n

\u201cUnpaid caregivers are working less than they want or leaving the workforce to provide the care that keeps older adults and people with disabilities out of nursing homes and other high-cost institutional settings,\u201d said Tami Jackson, Survival Coalition Co-Chair. \u201cUnpaid caregivers are aging. They cannot provide the same amount of care forever. Wisconsin needs to invest in care infrastructure to keep people in the workforce and out of expensive Medicaid funded institutions.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

\u201cPeople with disabilities, older adults, and family caregivers are struggling to get care needs met even if they are in Family Care, IRIS, or CLTS,\u201d said Jason Glozier, Survival Coalition Co-Chair. \u201cSurvival Coalition\u2019s survey clearly shows our current Home and Community Based Service system supplements the unpaid work families are already doing everyday.\u201d Unpaid family […]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[4],"tags":[],"_links":{"self":[{"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/posts\/3241"}],"collection":[{"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/comments?post=3241"}],"version-history":[{"count":1,"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/posts\/3241\/revisions"}],"predecessor-version":[{"id":3242,"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/posts\/3241\/revisions\/3242"}],"wp:attachment":[{"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/media?parent=3241"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/categories?post=3241"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.survivalcoalitionwi.org\/index.php\/wp-json\/wp\/v2\/tags?post=3241"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}